My Epilepsy Story

juvenile epilepsy

01 Mar
1

Collaboration is Key

Collaboration is Key Today is our 3rd Annual International Women With Epilepsy Day!  WOW, this has been an AMAZING journey to get us here!  As I sit here thinking about…

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09 Jun
0

Addressing Healthcare Disparities in Women with Epilepsy

My Epilepsy Story (MES) was founded based off inequities of research into epilepsy and women’s health, and the consequences of being in an under researched patient population. We see a…

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04 Feb
0

Dr. Sarita Maturu’s Story

I became interested in epilepsy very soon after I started my Neurology residency. The intricacies of the disease, the ability to make a meaningful difference in terms of treatment and quality…

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Dr. Anup Patel Headshot
17 Dec
0

Transitioning from a Pediatric Neurologist to an Adult Neurologist

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Anup Patel, Associate Professor of Neurology and Pediatrics, at Nationwide Children’s Hospital and The…

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20 Nov
0

Managing Your Epilepsy & Tracking Your Seizures

On our series to EMPOWER Women and Girls Living with Epilepsy, today we hear from Robert Moss, Co-Founder of SeizureTracker.com on: Managing your Epilepsy & Tracking your Seizures    Robert Moss knows…

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12 Nov
0

Maci’s Story

With November being “National Epilepsy Awareness Month” I thought now would be an appropriate time to put something out there about the invisible disability that I have lived with for…

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17 Sep
0

Christina’s Story

When I was in 8th grade I had my first seizure. After not being able to see and then losing all motor skills, my feet were shaking and I was internally yelling…

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20 Aug
0

It’s Back To School Time

BACK to SCHOOL TIPS from MES!   Yes, Folks, it’s that time of year again…so here are 10 tips to help prepare your child and yourself for the upcoming school…

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31 Jul
0

Meet our MES Ambassadors and Join With Us

  California Ashley Garcia – CA My name is Ashley Garcia. I am a 23 year old student from CA. I was diagnosed with epilepsy at age 13, and have…

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26 Jul
0

MES Ambassador Program

MES Ambassador Program    My Epilepsy Story (MES) is excited to announce we are accepting applications for our Ambassador Program.  This program will have MES Ambassadors from all across the…

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01 Mar
0

International Women with Epilepsy Day

March 1st is the 1st Annual International Women with Epilepsy Day! Today is International Women with Epilepsy Day!  This has been a vision of mine for several years to have…

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30 Dec
0

Reflecting on 2018

As I reflect on 2018 the word that comes to mind is Thankful.  I am thankful for wishes… I am thankful for all that we are are accomplishing at My…

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27 Nov
0

The Power of Exercise

My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have…

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16 Nov
0

Depression and Epilepsy

Depression and Epilepsy You may not know but depression and epilepsy can go hand in hand, so it is prudent to be aware of any potential triggers, such as loss…

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03 Oct
0

Help! My Daughter was Diagnosed with Epilepsy….. I Need a Pediatrician

[title text=”Ask An Expert: Dr. Mukundan”] Today Dr. Chetan R. Mukundan will answer a few questions from parents about finding a pediatrician to care for your daughter and her epilepsy….

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28 Sep
0

I am just a teenage girl….Why do I have to have epilepsy?

Why ME???  I know it just isn’t fair!  You were just like all the other girls just last week… Then it happened… You had a seizure and now your life…

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26 Aug
0

Transitioning from Pediatric to Adult Neurology

Transitioning from Pediatric to Adult Neurologist   Transitions are always difficult, but can also be rewarding when done with preparation and awareness of the important issues.  It can be particularly…

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01 Aug
0

So You Are College Bound…..Now What?

Graduations have come to an end and the summer is here.   I sit here thinking about attending our “Oldest Daughter, Ire”, from another set of parents, high school graduation at…

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09 Jul
0

Know your Seizure Type

Know your seizures! A first time and refresher guide to understanding different seizure types for people with epilepsy. Dr. Michael Kinney MB, MRCP (U.K.) and Dr. Kimford J. Meador MD….

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03 Jul
0

Kimford J. Meador Research in Women with Epilepsy Award

In life, there are few people that are true world changers. I believe that the medical community has the opportunity to be full of world changers if they stop, pause,…

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11 May
0

SeizureTracker.com isn’t just for tracking “SEIZURES”

In today’s world we are all busy with LIFE… We never seem to have enough time in the day to get everything accomplished.  Whether it is getting things done at…

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20 Mar
0

Death is Hard….Yet We Celebrate a Life Fulfilled

When you hear the news that one of the women that was such a huge influence on your life as a young teenage girl has passed away there is first…

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11 Jan
0

An Introduction to Health & Wellness

Hello from MES’s new Health & Wellness Director! It’s that time of year again. No, I’m not talking about the holidays, although I do hope you all had a happy…

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06 Jan
0

Be BOLD while living with Epilepsy in 2018

It’s New Year’s Eve, the end of 2017, and the time of year when everyone is setting their New Year’s resolutions and goals for 2018.  As I reflect on the…

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04 Oct
0

College is a time of “Self-Discovery”…..

“College is a time of self-discovery and growth, but it can also be an intense four years of stress.”  My first two years in college were especially hard on me;…

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14 Dec
0

Beauty is Right in Front of You

As we head into the coldest months of the year we all need a pick me up to make us feel better especially after the hustle and bustle of the…

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01 Dec
0

Holiday Event Planning

At My Epilepsy Story,  we love to share with you what other Women With Epilepsy are doing in their lives while managing their epilepsy.  I want to introduce you to…

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30 Nov
0

Exploring What Care a Pharmacist Can Provide for Women with Epilepsy

  Most women with epilepsy take antiepileptic drugs for a substantial portion of their life. This chronic therapy creates an opportunity for pharmacists to play a significant role in the…

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28 Nov
0

Are You Prepared for Your Neurology Appointment?

So, you’ve scheduled an appointment with a new neurologist and you’ve waited weeks (even months) for the appointed time. But….are you prepared for the visit? There’s much more involved than…

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24 Nov
0

Reasons for Giving Thanks in the Midst of Epilepsy

On this Thanksgiving Holiday, as the Education Coordinator for My Epilepsy Story (MES), I want to reflect on the many things that I am truly thankful for this holiday season…

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17 May
0

The Future Belongs to You

“The future belongs to those who believe in the beauty of their dreams.” ~Eleanor Roosevelt   As we begin the graduation season, I am reflecting on what these young graduates…

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12 Mar
0

Mosaic

A mosaic is something that resembles a picture or decoration that is made up of diverse elements. These broken pieces are what makes a mosaic beautiful.   In our brokenness of…

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25 Jan
0

Ashley’s Story

My epilepsy story began when I was 3 years old. I came down with a severe case of Roseola and had a really high fever. One morning my mom came…

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23 Nov
0

Elizabeth’s Story

I was diagnosed with juvenile myoclonic epilepsy the weekend after attending my orientation at The Ohio State University. I started treatment with medication just three weeks before I was due…

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We want to hear from you! We’re an open door, as a resource for women and girls diagnosed epilepsy.
Call Us (615) 822-4224

We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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Receive valuable content and personal stories from other women and children just like yourself.

We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Stay Updated

Receive valuable content and personal stories from other women and girls just like yourself.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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