This is our story, and this is why we’re here

To help women and girls living with epilepsy

Be part of Mosaic, and submit your story today.

If you’re a woman or girl living with epilepsy, Mosaic is our initiative to help us learn from each other, by storytelling.

SubmIT TO MOSAIC

Message-256

Signup for our mailing list to get updates on events, fundraisers, or information on new epilepsy treatments.

(We promise never to spam you or sell your information.)

Our MISSION

My Epilepsy Story is an organization that serves to bridge the gap for women and young adolescent girls diagnosed with epilepsy, as well as the children impacted by their mother’s epilepsy by Advocating, Researching, and Educating others about epilepsy. My Epilepsy Story serves these females, their families, and the medical professionals that selflessly care for them.

ADVOCATE

Awareness is crucial. We want you to be empowered.

RESEARCH

Epilepsy is not beyond treatment, or a cure.

EDUCATE

Epilepsy impacts more lives than you think.

1 in 26 people live with epilepsy. Please consider making a monthly recurring donation of $26 to support epilepsy research.

Donate $26 Today

News and UpdatesSee More

Help! My Daughter was Diagnosed with Epilepsy….. I Need a Pediatrician

Today Dr. Chetan R. Mukundan will answer a few questions from parents about finding a[...]

I am just a teenage girl….Why do I have to have epilepsy?

Why ME??? I know it just isn’t fair! You were just like all the other[...]

New Research on Prescribing Medication in Pregnant Women with Epilepsy

Background – Why? In the early 2000’s, results from several antiepileptic drug (AED) pregnancy[...]

What is Catamenial Epilepsy?

Catamenial Epilepsy: What is it, and what can be done about it? Catamenial[...]

Celebrating the Little Boy That Started it All

As I sit here thinking of the My Epilepsy Story (MES) organization and how far[...]

Transitioning from Pediatric to Adult Neurology

Transitioning from Pediatric to Adult Neurologist Transitions are always difficult, but can also be[...]

Our Partners

About My Epilepsy Story

Brandy Parker-McFadden
Founder

Founder, Wife, Mother and Woman with Epilepsy

My goal is to help other women and girls living with epilepsy and the doctors that care for them.

I have had epilepsy for over 20 years. I have generalized tonic-clonic seizures. While I am in the group of people with epilepsy that is controlled, I realize the importance of epilepsy research. Epilepsy research falls further behind other neurological diseases. My hope is for better education, treatment options and a cure for epilepsy.