MONEAD Study Group (2020) Summary
MONEAD Study Group Maternal Outcomes and Neurodevelopmental Effects of Antiepileptic Drugs The Ohio State University Medical Center’s Epilepsy Team held a journal club on the recently published article: Pennell PB, French JA,…
Read More
Dr. Margaret Beigel’s Story
Meet Dr. Margaret Beigel, an Ohio State University Neurology Resident Tell us a bit about yourself. Hey everyone, I am Margaret – a current PGY3 neurology resident at The…
Read More
Making Sense of 2020
As I sit here wondering what to write my heart aches for so many this year all across the world…. The heartache, pain, and loss can be so overwhelming to comprehend….
Read More
2020 Kimford J. Meador Research in Women with Epilepsy Award
The Kimford J. Meador Research in Women with Epilepsy Award is awarded to provide support for ealy career clinician scientists who have made significant contributions to understanding and better care…
Read More
Addressing Healthcare Disparities in Women with Epilepsy
My Epilepsy Story (MES) was founded based off inequities of research into epilepsy and women’s health, and the consequences of being in an under researched patient population. We see a…
Read More
Pregnancy and Epilepsy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Kimford J. Meador, Dr. Meador is a Neurologist and Professor of Neurology in Palo…
Read More
Staying SAFE during the Coronavirus Outbreak
Preparing for the Coronavirus can be stressful so we have compiled a list of things to help you during this time: Wash your hands for at least 20 seconds with…
Read More
Dr. Sarita Maturu’s Story
I became interested in epilepsy very soon after I started my Neurology residency. The intricacies of the disease, the ability to make a meaningful difference in terms of treatment and quality…
Read More
Breastfeeding and Epilepsy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Gholam Motamedi, Professor of Neurology and Director of the Comprehensive Epilepsy Center at Georgetown…
Read More
Fertility and Epilepsy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Page B. Pennell, Professor of Neurology, at Harvard Medical School and Director of Research…
Read More
Managing your Medication during Pregnancy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Torbjörn Tomson, Department of Neurology, at Karolinska University Hospital in Stockholm, Sweden on: “Managing Your Medication During Pregnancy“ …
Read More
Managing Your Epilepsy & Tracking Your Seizures
On our series to EMPOWER Women and Girls Living with Epilepsy, today we hear from Robert Moss, Co-Founder of SeizureTracker.com on: Managing your Epilepsy & Tracking your Seizures Robert Moss knows…
Read More
Meet our MES Ambassadors and Join With Us
California Ashley Garcia – CA My name is Ashley Garcia. I am a 23 year old student from CA. I was diagnosed with epilepsy at age 13, and have…
Read More
MES Ambassador Program
MES Ambassador Program My Epilepsy Story (MES) is excited to announce we are accepting applications for our Ambassador Program. This program will have MES Ambassadors from all across the…
Read More
Fresh Fridays! New Summer Recipe Series
Hello friends! Jodi Suglio, MES Health & Wellness director here. As promised in my lil Facebook teaser post earlier this week (if you don’t follow us on our socials, do…
Read More
Join MES for Epilepsy Education Day at UK Healthcare on June 8th
We are excited to announce that we will be at UK Healthcare for their annual Epilepsy Education Day! Please join us and hear our Executive Director/Founder Brandy McFadden as the…
Read More
Sara’s Story
I was 18-months-old when I had my first seizure. It was during a very high fever, so considered a febrile seizure, but it was a seizure nonetheless. My father was…
Read More
International Women with Epilepsy Day
March 1st is the 1st Annual International Women with Epilepsy Day! Today is International Women with Epilepsy Day! This has been a vision of mine for several years to have…
Read More
Epilepsy & Stress
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Michael Privitera from the Epilepsy Center at the University of Cincinnati Gardner Neuroscience…
Read More
Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant
Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant In a new finding, 53 percent of women with frontal lobe epilepsy, in which the seizures…
Read MoreReflecting on 2018
As I reflect on 2018 the word that comes to mind is Thankful. I am thankful for wishes… I am thankful for all that we are are accomplishing at My…
Read MoreManaging Epilepsy and a Baby in the NICU
Managing Epilepsy with a Baby in the NICU Last April 2017 my daughter, Zoey, came into this world a lot earlier than expected. She was born at 31 weeks,…
Read MoreDoes every woman living with epilepsy need a primary care doctor?
We are launching a new video series to EMPOWER Women and Girls Living with Epilepsy. Today we hear from Dr. Richmond Akatue from Meharry Medical College in Nashville, Tennessee on:…
Read More
Educating the Medical Community with a New Video Series
We are launching new videos this month for patients and the medical community. We wanted to share with you one of our videos that will be used for educating physicians…
Read MoreCONGRATULATIONS Ladies! We did it!!!
Women living with epilepsy CONGRATULATIONS most of us have been successful…. we have sent the message to our daughters that you keep secrets. We have taught them that it is…
Read MoreNew Research on Prescribing Medication in Pregnant Women with Epilepsy
Background – Why? In the early 2000’s, results from several antiepileptic drug (AED) pregnancy registries revealed that valproate the highest risks of AEDs for congenital malformations. In addition around…
Read More
What is Catamenial Epilepsy?
Catamenial Epilepsy: What is it, and what can be done about it? Catamenial epilepsy is not a specific type of epilepsy or type of seizure. The term simply…
Read More
Epilepsy and Fertility
The first article I would like to discuss is about fertility in women with epilepsy. This is a topic I (understandably) get many questions about in my clinic and am…
Read MoreKnow your Seizure Type
Know your seizures! A first time and refresher guide to understanding different seizure types for people with epilepsy. Dr. Michael Kinney MB, MRCP (U.K.) and Dr. Kimford J. Meador MD….
Read MoreKimford J. Meador Research in Women with Epilepsy Award
In life, there are few people that are true world changers. I believe that the medical community has the opportunity to be full of world changers if they stop, pause,…
Read MoreSeizureTracker.com isn’t just for tracking “SEIZURES”
In today’s world we are all busy with LIFE… We never seem to have enough time in the day to get everything accomplished. Whether it is getting things done at…
Read MoreDepression, Anxiety, & Epilepsy……
Depression, Anxiety, and Epilepsy….. How to know if I have Depression or Anxiety? This is such a great question! Many people are stressed over things in their lives yet that…
Read MoreEpilepsy Birth Control Registry
What is safe and effective contraception for women with epilepsy? Background We know that reproductive hormones such as the ones that are in various forms of hormonal contraception can affect…
Read More
What about the Women and Girls?
The world seems ever changing and yet I feel as though so much still remains the same…Each day new things are being presented to us to explore and experience, but…
Read More
Holiday Event Planning
At My Epilepsy Story, we love to share with you what other Women With Epilepsy are doing in their lives while managing their epilepsy. I want to introduce you to…
Read More
Exploring What Care a Pharmacist Can Provide for Women with Epilepsy
Most women with epilepsy take antiepileptic drugs for a substantial portion of their life. This chronic therapy creates an opportunity for pharmacists to play a significant role in the…
Read More
Are You Prepared for Your Neurology Appointment?
So, you’ve scheduled an appointment with a new neurologist and you’ve waited weeks (even months) for the appointed time. But….are you prepared for the visit? There’s much more involved than…
Read More
Reasons for Giving Thanks in the Midst of Epilepsy
On this Thanksgiving Holiday, as the Education Coordinator for My Epilepsy Story (MES), I want to reflect on the many things that I am truly thankful for this holiday season…
Read More
A Partnership is Blooming
At My Epilepsy Story, we are partnering with different companies to help “Bridge the Gap“ for women and girls living with epilepsy. In forming partnerships, this allows us to serve women…
Read More
Epilepsy Safety with your Newborn Baby
Your new baby has arrived and you are excited, tired, sleep deprived and on emotional roller coaster. The joy of having that precious baby in your arms brings a full…
Read More
Women with Disabilities Must Tackle More Hurdles than Men in the Workplace
Women with Disabilities Must Tackle More Hurdles than Men in the Workplace November is Epilepsy Awareness Month, and organizations around the country – like My Epilepsy Story – are spreading…
Read More
“It always seems impossible…..”
“It always seems impossible until it’s done.” ~Nelson Mandela As I begin to think about Mother’s Day, I am reminded of all the wonderful women that have been brought into…
Read More
Ashley’s Story
My epilepsy story began when I was 3 years old. I came down with a severe case of Roseola and had a really high fever. One morning my mom came…
Read More
Meg’s Story
It was March of my freshman year of high school. My childhood dream had come true, and I was just finishing my first season on the high school basketball team….
Read More
Elizabeth’s Story
I was diagnosed with juvenile myoclonic epilepsy the weekend after attending my orientation at The Ohio State University. I started treatment with medication just three weeks before I was due…
Read More
Choosing the Right Health Insurance Plan
Choosing the right health insurance plan from the exchange Gone are the days of worrying about not having your pre-existing condition covered by your new insurance company. New considerations have…
Read MoreWe want to hear from you! We’re an open door, as a resource for women and girls diagnosed epilepsy.
Call Us (615) 822-4224
We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.
Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.
Stay Updated
Receive valuable content and personal stories from other women and children just like yourself.
We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.
Navigation
Resources
Stay Updated
Receive valuable content and personal stories from other women and girls just like yourself.
Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.
Copyright
2024
© All rights reserved. My Epilepsy Story
Website design by Navarro Creative Group