Category Archives: Real Life Epilepsy Stories

When I was in 8th grade I had my first seizure. After not being able to see and then losing all motor skills, my feet were shaking and I was internally yelling at myself to stop this nonsense and not cause a scene. I then woke up on the floor surrounded by my mom and paramedics. I […]

I was 18-months-old when I had my first seizure.  It was during a very high fever, so considered a febrile seizure, but it was a seizure nonetheless.  My father was a doctor who had been a front line medic in World World II, but, the story goes, he completely lost his cool when I had […]

My husband and I recently adopted a precious little girl, Virginia Mei, from China. Virginia Mei’s adoption was a special needs adoption. We chose Virginia Mei knowing she had hydrocephalus- fluid on the brain. In China, we were informed from caregivers in her orphanage that she had a shunt in her head to help relieve the […]

My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have never been controlled, so I’ve had many surgeries in an attempt to identify the focal point and resect it. Within the last five years, I […]

My epilepsy story began when I was 3 years old. I came down with a severe case of Roseola and had a really high fever. One morning my mom came into my room and found me having a seizure. No one knows exactly how long the seizure lasted, but if a seizure lasts for a […]

It was March of my freshman year of high school. My childhood dream had come true, and I was just finishing my first season on the high school basketball team. On the way home from school that Friday, I was in a car accident with four other girls. An ambulance rushed me to the hospital […]

My name is Ashley. I am twenty years old and I have epilepsy. I was thirteen when I had my first grand mal seizure, and admittedly I do not remember much of it. My family and I were on our way to Washington and we had left before sunrise to get an early start. A […]

I was diagnosed with juvenile myoclonic epilepsy the weekend after attending my orientation at The Ohio State University. I started treatment with medication just three weeks before I was due to move from Michigan to Columbus, Ohio to begin my freshman year. Imagine the worry that my mother went through. My seizures actually began when […]