Category Archives: Real Life Epilepsy Stories

In my crazy busy weekly schedule, I look forward to Wednesday mornings.  I enthusiastically anticipate this 4-hour block of time as I know I will be working in our outpatient epilepsy clinic.  I am so blessed to have this opportunity to work not only with my favorite Nurse Practitioner (Lucretia Long), but also with many […]

My Epilepsy Story (MES) was founded based off inequities of research into epilepsy and women’s health, and the consequences of being in an under researched patient population. We see a continued need to address the healthcare disparities within the women with epilepsy community. Disparities in the quality of healthcare are known to persist in rural […]

Join Us Every Week! My Epilepsy Story is launching a weekly Online Support Group!  In this globally chaotic time anything can become or seem overwhelming. Whether you have questions about COVID-19 & Epilepsy, telemedicine during quarantine, have more general questions, or just need someone who understands to listen, we invite you to join us every […]

I became interested in epilepsy very soon after I started my Neurology residency. The intricacies of the disease, the ability to make a meaningful difference in terms of treatment and quality of life, and the wonderful patients that I get to see that have been diagnosed with this chronic condition have made me want to work […]

Taking care of others has always been strong personality traits instilled in me by watching my mother do the same for her family.  Transferring that quality to becoming a doctor and providing care for others is due to the nurturing of my father.  My journey into medicine started young and I cannot imagine any other […]

My name is Tiffany.  I’ve lived with epilepsy for over 10 years, having survived a seizure-car crash.  I’d been married for only four months at this time.  After diagnosis, I had to stop working, my husband and I lost our home, and had to begin our lives all over again.  Inspired by this tragedy, we […]

With November being “National Epilepsy Awareness Month” I thought now would be an appropriate time to put something out there about the invisible disability that I have lived with for about 10 years. Until earlier this year when Disney’s young adult actor, Cameron Boyce, passed away in his sleep from a seizure, epilepsy hasn’t gotten […]

My story with epilepsy began right after my daughter turned two years old.  She suddenly started turning blue, staring, and became lethargic. Over six months of testing, the episodes went from once every two weeks to 9 per day.  Leighanne’s seizures presented as several other serious health problems, so it wasn’t until a scheduled inpatient […]