Category Archives: Helpful Epilepsy Information

Coming Soon!! We are excited to announce that March 1st is our first annual International Women with Epilepsy Day!  This day is to EMPOWER Women and Girls Living with Epilepsy in EVERY corner of the world.  At My Epilepsy Story (MES), we are going to ‘Bridge the Gap’ by Advocating, Researching and Educating for these young girls […]

How Social Stigma Affects Quality of Healthcare in Latinx Community Introduction Epilepsy is a historically misunderstood disease. While professionals are more knowledgeable, community and general knowledge is highly lacking. Approximately 65 million people in the world have some form of epilepsy, and 1 in 26 will develop epilepsy in their lifetime (Sirven & Shafer, 2014). […]

Managing Epilepsy with a Baby in the NICU   Last April 2017 my daughter, Zoey, came into this world a lot earlier than expected. She was born at 31 weeks, 5 days, weighing only 3 lbs.  I remember several hours after her birth being wheeled up to the NICU to meet my daughter for the […]

My friend, Brandy with My Epilepsy Story, reached out to me and asked if I would write something that might help others like me, who have experienced the tragedy of loss.  Something that would help them be able to get through the holidays with a little comfort in knowing they are not alone.  Something that […]

The captain’s voice breaks through my efforts of ignoring my talkative seat mate, who is practically sitting in my lap. “Due to a severe thunderstorm and circling the airport for an hour waiting for a safe break to land, we are running low on fuel. We will divert to Greensboro, NC to refuel. Those with connecting […]

Today Dr. Chetan R. Mukundan will answer a few questions from parents about finding a pediatrician to care for your daughter and her epilepsy.  We want you to remember that we are working together as a team with the Pediatric Neurologist to care for your daughter.  We are also teaching your daughter to learn about […]

  Background – Why? In the early 2000’s, results from several antiepileptic drug (AED) pregnancy registries revealed that valproate the highest risks of AEDs for congenital malformations. In addition around the same time, researchers from the NIH NEAD study examined the short and long-term outcomes in babies exposed to four different AEDs during pregnancy.  From […]

Catamenial Epilepsy: What is it, and what can be done about it?     Catamenial epilepsy is not a specific type of epilepsy or type of seizure.  The term simply refers to a situation for women with epilepsy who are of reproductive age who have seizures in association with their menstrual cycle.  Therefore, the term […]

Transitioning from Pediatric to Adult Neurologist   Transitions are always difficult, but can also be rewarding when done with preparation and awareness of the important issues.  It can be particularly difficult to leave the neurologist who may have been the one who diagnosed you with epilepsy and guided you through difficult times. There are several […]

Graduations have come to an end and the summer is here.   I sit here thinking about attending our “Oldest Daughter, Ire”, from another set of parents, high school graduation at the end of May.  As we sat watching her graduate from Franklin High School it reminded me of how quickly the school years go by […]