Category Archives: Helpful Epilepsy Information

Seizure Tracker IT’S NOT JUST SEIZURESTM (INJS) Initiative Epilepsy is so much more than just a medical diagnosis. Quality of life can often be overlooked and the impact of living with seizures on self and family is limitedly understood. To better improve on this aspect of epilepsy care, My Epilepsy Story is partnering with Seizure Tracker to promote a […]

“I will never forget the first time I saw my wife have a seizure. I felt pure panic, fear, confusion, uncertainty, and most of all helplessness. My knowledge of epilepsy came from what I’d seen on TV and movies. After a multitude of tests, hospital and doctors’ visits we received the diagnosis of epilepsy.  And […]

COVID-19 has ushered in a new normal in many aspects of our lives.  Along with the drastic changes in our basic social behavior and habits there are many new questions that need to be addressed.  As we head into another school year the prospects of determining whether to send your children back to school, have […]

The COVID-19 pandemic has brought unprecedented changes in how patients can receive medical care and access their physicians.  Although telemedicine has been around for several years, use has been limited, mostly due to restrictions in insurance coverage, location where telemedicine could be performed and the need for ‘HIPAA compliant’ platforms.  However, beginning in March, both […]

My Epilepsy Story (MES) was founded based off inequities of research into epilepsy and women’s health, and the consequences of being in an under researched patient population. We see a continued need to address the healthcare disparities within the women with epilepsy community. Disparities in the quality of healthcare are known to persist in rural […]

CARES ACT (2020) + Unemployment Benefits Millions of Americans have been either laid off or furloughed, and are thus without a reliable source of income. The global Covid-19 pandemic has changed the rules of traditional unemployment by expanding who is eligible for benefits. Many people like gig workers or self-employed workers are traditionally not eligible […]

Join Us Every Week! My Epilepsy Story is launching a weekly Online Support Group!  In this globally chaotic time anything can become or seem overwhelming. Whether you have questions about COVID-19 & Epilepsy, telemedicine during quarantine, have more general questions, or just need someone who understands to listen, we invite you to join us every […]

Preparing for the Coronavirus can be stressful so we have compiled a list of things to help you during this time: Wash your hands for at least 20 seconds with soap and water especially after using the restroom, before a meal, and after sneezing, blowing your nose or coughing.  Stay home if you are sick  […]

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Anup Patel, Associate Professor of Neurology and Pediatrics, at Nationwide Children’s Hospital and The Ohio State University Medical Center in Columbus, Ohio on: “Transitioning from a Pediatric Neurologist to an Adult Neurologist“   Anup Patel, M.D. is board certified […]

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Page B. Pennell, Professor of Neurology, at Harvard Medical School and Director of Research at Brigham and Women’s Hospital in Boston on: “Fertility and Epilepsy“      Page B. Pennell, MD is a Professor of Neurology at Harvard Medical […]