My Epilepsy Story

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1 in every 52 women lives with epilepsy. Please consider making a monthly recurring donation of $52 to support epilepsy research.

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Welcome to My Epilepsy Story

My Epilepsy Story (MES) is an international, non-profit organization that serves to provide epilepsy resources for women and girls diagnosed with epilepsy as well as support the children impacted by their mother’s epilepsy to bridge the gap by Collaborating, Advocating, Researching, and Educating (C.A.R.E.) people everywhere about women’s health and epilepsy. 

Our organization distinguishes itself from other organizations by not accepting any pharmaceutical funding. MES has adopted a policy of strict independence when it comes to taking money from drug companies. We are committed to being consistently objective by providing unbiased information about services and resources that may be available. We also believe it is important for women and girls living with epilepsy to be informed about news and issues around drugs so they can make an educated choice about their healthcare decisions. Our priority at My Epilepsy Story is to serve these females, their families, and the medical professionals who selflessly care for them.

A Little About Our Founder

Founded by Brandy McFadden in 2013, her passion is to advocate for cutting-edge epilepsy research, educate doctors about the patient perspective, educate patients about their epilepsy, and raise funds to do this while sharing her personal story.  As a woman living with epilepsy, Brandy is deeply interested in women’s health issues, specifically women living with epilepsy. She understands firsthand how epilepsy impacts not only the woman but her entire family. 

“Women and girls’ health issues related to epilepsy need to be addressed globally.”

In addition, Brandy is interested in the FULL IMPACT that anti-seizure medications have on ALL people with epilepsy.

“Please join me to help Bridge the Gap for women and girls diagnosed with epilepsy.  Together We Can!” – Brandy McFadden, Founder My Epilepsy Story

BRANDY MCFADDEN
BRANDY MCFADDEN

WE ADVOCATE

Awareness is crucial. We want you to be empowered.

WE RESEARCH

Epilepsy is not beyond treatment, or a cure.

WE EDUCATE

Epilepsy impacts more lives than you think.

This is Our Story, and Why We’re Here. To Help Women and Girls Living With Epilepsy.

Be a Part of Mosaic. Submit Your Story Today.

If you’re a woman or girl living with epilepsy, Mosaic is our initiative to help us learn from each other, by storytelling.

Our Mission

My Epilepsy Story (MES) is an international, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy, as well as the children impacted by their mother’s epilepsy by Collaborating, Advocating, Researching, and Educating (C.A.R.E.) about women’s health and epilepsy.  Our organization is also unique in the aspect that MES does not accept ANY pharmaceutical funding. MES is dedicated to serving these females, their families, and the medical professionals that selflessly care for them.

Become a Corporate Collaborator

1 in 52 females will be diagnosed with epilepsy. Join with us to EMPOWER the lives of millions of women and girls living with epilepsy around the world by becoming a Corporate Collaborator. The financial support of our Corporate Collaborators helps support our mission to Advocate, Research and Educate women and girls living with epilepsy as well as the providers that selflessly care for them across the globe. Contact us to learn more or to partner with us.

Our Collaborators

Donate Today

1 in 52 women live with epilepsy. Please consider making a monthly recurring donation of $52 to support epilepsy research.

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Support us by shopping through our Amazon Smile.

Upcoming Events

There is no Event

My Epilepsy Story
IWWE C.A.R.E. SEMINAR Series

IWWE C.A.R.E. SEMINAR SERIES

Dr. P. Emanuela Voinescu, Department of Neurology at Brigham and Women’s Hospital, and Dr. Mary A. O’Neal, Director of Women’s Neurology at Brigham and Women’s Hospital, will be discussing the complexities of women’s health and epilepsy. Medical professionals and medical/nursing students are invited to register today!

WEEKLY ONLINE SUPPORT GROUP - My Epilepsy Story
Support Groups and Resources

My Epilepsy Story is currently working to develop support groups for women and girls with Epilepsy, and we invite you to get involved and join us to ask questions or just listen to someone who understands. 

We want to hear from you! We’re an open door, as a resource for women and girls diagnosed epilepsy.
Call Us (615) 822-4224

We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

Stay Updated

Receive valuable content and personal stories from other women and children just like yourself.

We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Stay Updated

Receive valuable content and personal stories from other women and girls just like yourself.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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2024

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