Tag Archives: Women with Epilepsy

Managing Epilepsy with a Baby in the NICU   Last April 2017 my daughter, Zoey, came into this world a lot earlier than expected. She was born at 31 weeks, 5 days, weighing only 3 lbs.  I remember several hours after her birth being wheeled up to the NICU to meet my daughter for the […]

My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have never been controlled, so I’ve had many surgeries in an attempt to identify the focal point and resect it. Within the last five years, I […]

Depression and Epilepsy You may not know but depression and epilepsy can go hand in hand, so it is prudent to be aware of any potential triggers, such as loss of sunlight.  As the days grow shorter it is important to be on guard against onset of seasonal symptoms.  Here are a few things I’ve […]

We are launching a new video series to EMPOWER Women and Girls Living with Epilepsy.  Today we hear from Dr. Richmond Akatue from Meharry Medical College in Nashville, Tennessee on: Does every women living with epilepsy need a primary care doctor?      Dr. Richmond Akatue is an Associate Professor of Medicine. Dr. Akatue serves […]

We are launching new videos this month for patients and the medical community.  We wanted to share with you one of our videos that will be used for educating physicians as well as the medical community as a whole.  My Epilepsy Story (MES) believes that we need to educate the patient as well the medical […]

Women living with epilepsy CONGRATULATIONS most of us have been successful…. we have sent the message to our daughters that you keep secrets. We have taught them that it is okay to live in silence and shame. We have shown them by our actions that we do not tell others that we live with epilepsy […]

The captain’s voice breaks through my efforts of ignoring my talkative seat mate, who is practically sitting in my lap. “Due to a severe thunderstorm and circling the airport for an hour waiting for a safe break to land, we are running low on fuel. We will divert to Greensboro, NC to refuel. Those with connecting […]

  Background – Why? In the early 2000’s, results from several antiepileptic drug (AED) pregnancy registries revealed that valproate the highest risks of AEDs for congenital malformations. In addition around the same time, researchers from the NIH NEAD study examined the short and long-term outcomes in babies exposed to four different AEDs during pregnancy.  From […]

Transitioning from Pediatric to Adult Neurologist   Transitions are always difficult, but can also be rewarding when done with preparation and awareness of the important issues.  It can be particularly difficult to leave the neurologist who may have been the one who diagnosed you with epilepsy and guided you through difficult times. There are several […]

Graduations have come to an end and the summer is here.   I sit here thinking about attending our “Oldest Daughter, Ire”, from another set of parents, high school graduation at the end of May.  As we sat watching her graduate from Franklin High School it reminded me of how quickly the school years go by […]