Tag Archives: Women with Epilepsy

Hello friends! Jodi Suglio, MES Health & Wellness director here. As promised in my lil Facebook teaser post earlier this week (if you don’t follow us on our socials, do it!), I present “Fresh Fridays!”, a weekly healthy recipe share from some of my favorite chefs, dietitians, & go-to nutrition bloggers. I will be specifically […]

I was 18-months-old when I had my first seizure.  It was during a very high fever, so considered a febrile seizure, but it was a seizure nonetheless.  My father was a doctor who had been a front line medic in World World II, but, the story goes, he completely lost his cool when I had […]

Self-Love is the regard for one’s own well-being and happiness (chiefly considered as a desirable rather than narcissistic characteristic).  Self-love is not a bad thing when we do it correctly… In life, many women and girls do not love themselves whether it is from the pressures of society or from the pain of our pasts.  We […]

March 1st is the 1st Annual International Women with Epilepsy Day! Today is International Women with Epilepsy Day!  This has been a vision of mine for several years to have a day devoted to EMPOWER Women and Girls Living with Epilepsy in EVERY corner of the world and it is so exciting to see the […]

  Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Michael Privitera from the Epilepsy Center at the University of Cincinnati Gardner Neuroscience Institute in Cincinnati, Ohio on : “Epilepsy & Stress”   Dr. Michael Privitera is Professor of Neurology and Director of the Epilepsy Center at the […]

Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant   In a new finding, 53 percent of women with frontal lobe epilepsy, in which the seizures begin in the front of the brain, experience more frequent seizures during pregnancy, suggests a study that was presented at the American Epilepsy Society Annual […]

As I reflect on 2018 the word that comes to mind is Thankful.  I am thankful for wishes… I am thankful for all that we are are accomplishing at My Epilepsy Story (MES).  I am thankful for the amazing women and girls living with epilepsy that I have had the opportunity to meet this year. […]

Happy holidays friends! I hope this finds you well, I know it’s been awhile since I’ve last posted. I imagine, like me, you are diligently preparing for some amazing time with friends & family to celebrate this wonderful time of year.  Cleaning, cooking, decorating, shopping, traffic, parties & school programs, traveling… things can get really […]

Managing Epilepsy with a Baby in the NICU   Last April 2017 my daughter, Zoey, came into this world a lot earlier than expected. She was born at 31 weeks, 5 days, weighing only 3 lbs.  I remember several hours after her birth being wheeled up to the NICU to meet my daughter for the […]

My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have never been controlled, so I’ve had many surgeries in an attempt to identify the focal point and resect it. Within the last five years, I […]