Tag Archives: Real Life Stories

With November being “National Epilepsy Awareness Month” I thought now would be an appropriate time to put something out there about the invisible disability that I have lived with for about 10 years. Until earlier this year when Disney’s young adult actor, Cameron Boyce, passed away in his sleep from a seizure, epilepsy hasn’t gotten […]

When I was in 8th grade I had my first seizure. After not being able to see and then losing all motor skills, my feet were shaking and I was internally yelling at myself to stop this nonsense and not cause a scene. I then woke up on the floor surrounded by my mom and paramedics. I […]

My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have never been controlled, so I’ve had many surgeries in an attempt to identify the focal point and resect it. Within the last five years, I […]

Seizure freedom is never promised…. As I wrap my brain around the fact that I have just had my first seizure in years, the emotions are overwhelming.  First, the utter fear that has consumed me is almost too much to bear.  The fear of if another seizure will come or what people will think of […]

The first time I genuinely told my story, it was to complete strangers. I was shadowing a pediatric neurologist and knowing my background, he asked me to share my experience with epilepsy with one of his patients. She was having a difficult time in school, she was isolating herself from her family, and she felt […]

It’s New Year’s Eve, the end of 2017, and the time of year when everyone is setting their New Year’s resolutions and goals for 2018.  As I reflect on the past year, I look at what I have accomplished and the things that I have not accomplished…. We tend to be harder on ourselves than […]

“College is a time of self-discovery and growth, but it can also be an intense four years of stress.”  My first two years in college were especially hard on me; both emotionally draining and mentally demanding. I found myself in a new state across the country where I did not know a single person. My […]

“The future belongs to those who believe in the beauty of their dreams.” ~Eleanor Roosevelt   As we begin the graduation season, I am reflecting on what these young graduates will encounter as they enter the world.  The path that is in front of them is full of choices that will lead to different roads. […]

“It always seems impossible until it’s done.”  ~Nelson Mandela As I begin to think about Mother’s Day, I am reminded of all the wonderful women that have been brought into my life over the past few years.  The women that I am reflecting on are women that live with epilepsy on a daily basis. We […]

A mosaic is something that resembles a picture or decoration that is made up of diverse elements. These broken pieces are what makes a mosaic beautiful.   In our brokenness of living with epilepsy we have shattered dreams. These shattered dreams might be of a child impacted by seizures, infertility from epilepsy, loss of a wife […]