Tag Archives: Personal Story

My husband and I recently adopted a precious little girl, Virginia Mei, from China. Virginia Mei’s adoption was a special needs adoption. We chose Virginia Mei knowing she had hydrocephalus- fluid on the brain. In China, we were informed from caregivers in her orphanage that she had a shunt in her head to help relieve the […]

Women living with epilepsy CONGRATULATIONS most of us have been successful…. we have sent the message to our daughters that you keep secrets. We have taught them that it is okay to live in silence and shame. We have shown them by our actions that we do not tell others that we live with epilepsy […]

The first time I genuinely told my story, it was to complete strangers. I was shadowing a pediatric neurologist and knowing my background, he asked me to share my experience with epilepsy with one of his patients. She was having a difficult time in school, she was isolating herself from her family, and she felt […]

It’s New Year’s Eve, the end of 2017, and the time of year when everyone is setting their New Year’s resolutions and goals for 2018.  As I reflect on the past year, I look at what I have accomplished and the things that I have not accomplished…. We tend to be harder on ourselves than […]

At My Epilepsy Story, we are partnering with different companies to help “Bridge the Gap“ for women and girls living with epilepsy. In forming partnerships, this allows us to serve women and girls diagnosed with epilepsy without seeking funding from them, the patient.  It allows the patient and their families to come to us and just […]

A mosaic is something that resembles a picture or decoration that is made up of diverse elements. These broken pieces are what makes a mosaic beautiful.   In our brokenness of living with epilepsy we have shattered dreams. These shattered dreams might be of a child impacted by seizures, infertility from epilepsy, loss of a wife […]

My epilepsy story began when I was 3 years old. I came down with a severe case of Roseola and had a really high fever. One morning my mom came into my room and found me having a seizure. No one knows exactly how long the seizure lasted, but if a seizure lasts for a […]

My epilepsy story started with enjoying the 4th of July weekend out on the lake with family and friends in 2012. It was the perfect weekend filled with boating, fireworks, and celebrating our 4 year anniversary. My now husband Blake and I met in the mountains 4th of July weekend and love to celebrate each […]