Tag Archives: Girls with Epilepsy

How Social Stigma Affects Quality of Healthcare in Latinx Community Introduction Epilepsy is a historically misunderstood disease. While professionals are more knowledgeable, community and general knowledge is highly lacking. Approximately 65 million people in the world have some form of epilepsy, and 1 in 26 will develop epilepsy in their lifetime (Sirven & Shafer, 2014). […]

As I reflect on 2018 the word that comes to mind is Thankful.  I am thankful for wishes… I am thankful for all that we are are accomplishing at My Epilepsy Story (MES).  I am thankful for the amazing women and girls living with epilepsy that I have had the opportunity to meet this year. […]

Happy holidays friends! I hope this finds you well, I know it’s been awhile since I’ve last posted. I imagine, like me, you are diligently preparing for some amazing time with friends & family to celebrate this wonderful time of year.  Cleaning, cooking, decorating, shopping, traffic, parties & school programs, traveling… things can get really […]

My friend, Brandy with My Epilepsy Story, reached out to me and asked if I would write something that might help others like me, who have experienced the tragedy of loss.  Something that would help them be able to get through the holidays with a little comfort in knowing they are not alone.  Something that […]

My husband and I recently adopted a precious little girl, Virginia Mei, from China. Virginia Mei’s adoption was a special needs adoption. We chose Virginia Mei knowing she had hydrocephalus- fluid on the brain. In China, we were informed from caregivers in her orphanage that she had a shunt in her head to help relieve the […]

Depression and Epilepsy You may not know but depression and epilepsy can go hand in hand, so it is prudent to be aware of any potential triggers, such as loss of sunlight.  As the days grow shorter it is important to be on guard against onset of seasonal symptoms.  Here are a few things I’ve […]

We are launching a new video series to EMPOWER Women and Girls Living with Epilepsy.  Today we hear from Dr. Richmond Akatue from Meharry Medical College in Nashville, Tennessee on: Does every women living with epilepsy need a primary care doctor?      Dr. Richmond Akatue is an Associate Professor of Medicine. Dr. Akatue serves […]

We are launching new videos this month for patients and the medical community.  We wanted to share with you one of our videos that will be used for educating physicians as well as the medical community as a whole.  My Epilepsy Story (MES) believes that we need to educate the patient as well the medical […]

Women living with epilepsy CONGRATULATIONS most of us have been successful…. we have sent the message to our daughters that you keep secrets. We have taught them that it is okay to live in silence and shame. We have shown them by our actions that we do not tell others that we live with epilepsy […]

The captain’s voice breaks through my efforts of ignoring my talkative seat mate, who is practically sitting in my lap. “Due to a severe thunderstorm and circling the airport for an hour waiting for a safe break to land, we are running low on fuel. We will divert to Greensboro, NC to refuel. Those with connecting […]