My Epilepsy Story

Families

Zucchini Pizza Bites
26 Jul
0

Fresh Fridays! It’s (healthy) PIZZA Time!

Happy Fresh Friday folks! I’m back to sharing healthy recipes this week but curious- did anyone try that workout last week? Whoo! That circuit is pretty great! Today I’m sharing…

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Healthy Chicken Salad
14 Jun
0

Fresh Fridays! New Summer Recipe Series

Hello friends! Jodi Suglio, MES Health & Wellness director here. As promised in my lil Facebook teaser post earlier this week (if you don’t follow us on our socials, do…

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07 Jan
0

Epilepsy in Latinx Community

How Social Stigma Affects Quality of Healthcare in Latinx Community Introduction Epilepsy is a historically misunderstood disease. While professionals are more knowledgeable, community and general knowledge is highly lacking. Approximately…

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14 Dec
0

Surviving the Holidays after Losing Your Daughter to Epilepsy

My friend, Brandy with My Epilepsy Story, reached out to me and asked if I would write something that might help others like me, who have experienced the tragedy of…

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27 Nov
0

The Power of Exercise

My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have…

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03 Oct
0

Help! My Daughter was Diagnosed with Epilepsy….. I Need a Pediatrician

[title text=”Ask An Expert: Dr. Mukundan”] Today Dr. Chetan R. Mukundan will answer a few questions from parents about finding a pediatrician to care for your daughter and her epilepsy….

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24 Sep
0

New Research on Prescribing Medication in Pregnant Women with Epilepsy

  Background – Why? In the early 2000’s, results from several antiepileptic drug (AED) pregnancy registries revealed that valproate the highest risks of AEDs for congenital malformations. In addition around…

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My Epilepsy Story
16 Jul
0

Epilepsy and Fertility

The first article I would like to discuss is about fertility in women with epilepsy. This is a topic I (understandably) get many questions about in my clinic and am…

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01 Dec
0

Holiday Event Planning

At My Epilepsy Story,  we love to share with you what other Women With Epilepsy are doing in their lives while managing their epilepsy.  I want to introduce you to…

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30 Nov
0

Exploring What Care a Pharmacist Can Provide for Women with Epilepsy

  Most women with epilepsy take antiepileptic drugs for a substantial portion of their life. This chronic therapy creates an opportunity for pharmacists to play a significant role in the…

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28 Nov
0

Are You Prepared for Your Neurology Appointment?

So, you’ve scheduled an appointment with a new neurologist and you’ve waited weeks (even months) for the appointed time. But….are you prepared for the visit? There’s much more involved than…

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24 Nov
0

Reasons for Giving Thanks in the Midst of Epilepsy

On this Thanksgiving Holiday, as the Education Coordinator for My Epilepsy Story (MES), I want to reflect on the many things that I am truly thankful for this holiday season…

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21 Nov
0

Epilepsy Safety with your Newborn Baby

Your new baby has arrived and you are excited, tired, sleep deprived and on emotional roller coaster.  The joy of having that precious baby in your arms brings a full…

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16 Nov
0

Women with Disabilities Must Tackle More Hurdles than Men in the Workplace

Women with Disabilities Must Tackle More Hurdles than Men in the Workplace November is Epilepsy Awareness Month, and organizations around the country – like My Epilepsy Story – are spreading…

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17 May
0

The Future Belongs to You

“The future belongs to those who believe in the beauty of their dreams.” ~Eleanor Roosevelt   As we begin the graduation season, I am reflecting on what these young graduates…

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07 May
0

“It always seems impossible…..”

“It always seems impossible until it’s done.”  ~Nelson Mandela As I begin to think about Mother’s Day, I am reminded of all the wonderful women that have been brought into…

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25 Jan
0

Ashley’s Story

My epilepsy story began when I was 3 years old. I came down with a severe case of Roseola and had a really high fever. One morning my mom came…

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05 Dec
0

Meg’s Story

It was March of my freshman year of high school. My childhood dream had come true, and I was just finishing my first season on the high school basketball team….

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09 Nov
0

Mariellen’s Story

My epilepsy story started with enjoying the 4th of July weekend out on the lake with family and friends in 2012. It was the perfect weekend filled with boating, fireworks,…

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We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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Receive valuable content and personal stories from other women and children just like yourself.

We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Stay Updated

Receive valuable content and personal stories from other women and girls just like yourself.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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