Tag Archives: Epilepsy

Happy holidays friends! I hope this finds you well, I know it’s been awhile since I’ve last posted. I imagine, like me, you are diligently preparing for some amazing time with friends & family to celebrate this wonderful time of year.  Cleaning, cooking, decorating, shopping, traffic, parties & school programs, traveling… things can get really […]

Managing Epilepsy with a Baby in the NICU   Last April 2017 my daughter, Zoey, came into this world a lot earlier than expected. She was born at 31 weeks, 5 days, weighing only 3 lbs.  I remember several hours after her birth being wheeled up to the NICU to meet my daughter for the […]

My friend, Brandy with My Epilepsy Story, reached out to me and asked if I would write something that might help others like me, who have experienced the tragedy of loss.  Something that would help them be able to get through the holidays with a little comfort in knowing they are not alone.  Something that […]

My husband and I recently adopted a precious little girl, Virginia Mei, from China. Virginia Mei’s adoption was a special needs adoption. We chose Virginia Mei knowing she had hydrocephalus- fluid on the brain. In China, we were informed from caregivers in her orphanage that she had a shunt in her head to help relieve the […]

My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have never been controlled, so I’ve had many surgeries in an attempt to identify the focal point and resect it. Within the last five years, I […]

Depression and Epilepsy You may not know but depression and epilepsy can go hand in hand, so it is prudent to be aware of any potential triggers, such as loss of sunlight.  As the days grow shorter it is important to be on guard against onset of seasonal symptoms.  Here are a few things I’ve […]

We are launching a new video series to EMPOWER Women and Girls Living with Epilepsy.  Today we hear from Dr. Richmond Akatue from Meharry Medical College in Nashville, Tennessee on: Does every women living with epilepsy need a primary care doctor?      Dr. Richmond Akatue is an Associate Professor of Medicine. Dr. Akatue serves […]

We are launching new videos this month for patients and the medical community.  We wanted to share with you one of our videos that will be used for educating physicians as well as the medical community as a whole.  My Epilepsy Story (MES) believes that we need to educate the patient as well the medical […]

Women living with epilepsy CONGRATULATIONS most of us have been successful…. we have sent the message to our daughters that you keep secrets. We have taught them that it is okay to live in silence and shame. We have shown them by our actions that we do not tell others that we live with epilepsy […]

Today Dr. Chetan R. Mukundan will answer a few questions from parents about finding a pediatrician to care for your daughter and her epilepsy.  We want you to remember that we are working together as a team with the Pediatric Neurologist to care for your daughter.  We are also teaching your daughter to learn about […]