Tag Archives: Epilepsy

I was 18-months-old when I had my first seizure.  It was during a very high fever, so considered a febrile seizure, but it was a seizure nonetheless.  My father was a doctor who had been a front line medic in World World II, but, the story goes, he completely lost his cool when I had […]

Self-Love is the regard for one’s own well-being and happiness (chiefly considered as a desirable rather than narcissistic characteristic).  Self-love is not a bad thing when we do it correctly… In life, many women and girls do not love themselves whether it is from the pressures of society or from the pain of our pasts.  We […]

  Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Michael Privitera from the Epilepsy Center at the University of Cincinnati Gardner Neuroscience Institute in Cincinnati, Ohio on : “Epilepsy & Stress”   Dr. Michael Privitera is Professor of Neurology and Director of the Epilepsy Center at the […]

Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant   In a new finding, 53 percent of women with frontal lobe epilepsy, in which the seizures begin in the front of the brain, experience more frequent seizures during pregnancy, suggests a study that was presented at the American Epilepsy Society Annual […]

How Social Stigma Affects Quality of Healthcare in Latinx Community Introduction Epilepsy is a historically misunderstood disease. While professionals are more knowledgeable, community and general knowledge is highly lacking. Approximately 65 million people in the world have some form of epilepsy, and 1 in 26 will develop epilepsy in their lifetime (Sirven & Shafer, 2014). […]

As I reflect on 2018 the word that comes to mind is Thankful.  I am thankful for wishes… I am thankful for all that we are are accomplishing at My Epilepsy Story (MES).  I am thankful for the amazing women and girls living with epilepsy that I have had the opportunity to meet this year. […]

Happy holidays friends! I hope this finds you well, I know it’s been awhile since I’ve last posted. I imagine, like me, you are diligently preparing for some amazing time with friends & family to celebrate this wonderful time of year.  Cleaning, cooking, decorating, shopping, traffic, parties & school programs, traveling… things can get really […]

Managing Epilepsy with a Baby in the NICU   Last April 2017 my daughter, Zoey, came into this world a lot earlier than expected. She was born at 31 weeks, 5 days, weighing only 3 lbs.  I remember several hours after her birth being wheeled up to the NICU to meet my daughter for the […]

My friend, Brandy with My Epilepsy Story, reached out to me and asked if I would write something that might help others like me, who have experienced the tragedy of loss.  Something that would help them be able to get through the holidays with a little comfort in knowing they are not alone.  Something that […]

My husband and I recently adopted a precious little girl, Virginia Mei, from China. Virginia Mei’s adoption was a special needs adoption. We chose Virginia Mei knowing she had hydrocephalus- fluid on the brain. In China, we were informed from caregivers in her orphanage that she had a shunt in her head to help relieve the […]