Tag Archives: epilepsy and girls

As I reflect on 2018 the word that comes to mind is Thankful.  I am thankful for wishes… I am thankful for all that we are are accomplishing at My Epilepsy Story (MES).  I am thankful for the amazing women and girls living with epilepsy that I have had the opportunity to meet this year. […]

My friend, Brandy with My Epilepsy Story, reached out to me and asked if I would write something that might help others like me, who have experienced the tragedy of loss.  Something that would help them be able to get through the holidays with a little comfort in knowing they are not alone.  Something that […]

My husband and I recently adopted a precious little girl, Virginia Mei, from China. Virginia Mei’s adoption was a special needs adoption. We chose Virginia Mei knowing she had hydrocephalus- fluid on the brain. In China, we were informed from caregivers in her orphanage that she had a shunt in her head to help relieve the […]

My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have never been controlled, so I’ve had many surgeries in an attempt to identify the focal point and resect it. Within the last five years, I […]

Depression and Epilepsy You may not know but depression and epilepsy can go hand in hand, so it is prudent to be aware of any potential triggers, such as loss of sunlight.  As the days grow shorter it is important to be on guard against onset of seasonal symptoms.  Here are a few things I’ve […]

Women living with epilepsy CONGRATULATIONS most of us have been successful…. we have sent the message to our daughters that you keep secrets. We have taught them that it is okay to live in silence and shame. We have shown them by our actions that we do not tell others that we live with epilepsy […]

The captain’s voice breaks through my efforts of ignoring my talkative seat mate, who is practically sitting in my lap. “Due to a severe thunderstorm and circling the airport for an hour waiting for a safe break to land, we are running low on fuel. We will divert to Greensboro, NC to refuel. Those with connecting […]

Today Dr. Chetan R. Mukundan will answer a few questions from parents about finding a pediatrician to care for your daughter and her epilepsy.  We want you to remember that we are working together as a team with the Pediatric Neurologist to care for your daughter.  We are also teaching your daughter to learn about […]

Why ME???  I know it just isn’t fair!  You were just like all the other girls just last week… Then it happened… You had a seizure and now your life is completely different.  Your parents are always checking on you and won’t give you any space. You don’t want anyone to know you have epilepsy.  You […]

Catamenial Epilepsy: What is it, and what can be done about it?     Catamenial epilepsy is not a specific type of epilepsy or type of seizure.  The term simply refers to a situation for women with epilepsy who are of reproductive age who have seizures in association with their menstrual cycle.  Therefore, the term […]