Tag Archives: Epilepsy and Fertility

I was 18-months-old when I had my first seizure.  It was during a very high fever, so considered a febrile seizure, but it was a seizure nonetheless.  My father was a doctor who had been a front line medic in World World II, but, the story goes, he completely lost his cool when I had […]

Self-Love is the regard for one’s own well-being and happiness (chiefly considered as a desirable rather than narcissistic characteristic).  Self-love is not a bad thing when we do it correctly… In life, many women and girls do not love themselves whether it is from the pressures of society or from the pain of our pasts.  We […]

March 1st is the 1st Annual International Women with Epilepsy Day! Today is International Women with Epilepsy Day!  This has been a vision of mine for several years to have a day devoted to EMPOWER Women and Girls Living with Epilepsy in EVERY corner of the world and it is so exciting to see the […]

  Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Michael Privitera from the Epilepsy Center at the University of Cincinnati Gardner Neuroscience Institute in Cincinnati, Ohio on : “Epilepsy & Stress”   Dr. Michael Privitera is Professor of Neurology and Director of the Epilepsy Center at the […]

Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant   In a new finding, 53 percent of women with frontal lobe epilepsy, in which the seizures begin in the front of the brain, experience more frequent seizures during pregnancy, suggests a study that was presented at the American Epilepsy Society Annual […]

As I reflect on 2018 the word that comes to mind is Thankful.  I am thankful for wishes… I am thankful for all that we are are accomplishing at My Epilepsy Story (MES).  I am thankful for the amazing women and girls living with epilepsy that I have had the opportunity to meet this year. […]

Managing Epilepsy with a Baby in the NICU   Last April 2017 my daughter, Zoey, came into this world a lot earlier than expected. She was born at 31 weeks, 5 days, weighing only 3 lbs.  I remember several hours after her birth being wheeled up to the NICU to meet my daughter for the […]

We are launching new videos this month for patients and the medical community.  We wanted to share with you one of our videos that will be used for educating physicians as well as the medical community as a whole.  My Epilepsy Story (MES) believes that we need to educate the patient as well the medical […]

Women living with epilepsy CONGRATULATIONS most of us have been successful…. we have sent the message to our daughters that you keep secrets. We have taught them that it is okay to live in silence and shame. We have shown them by our actions that we do not tell others that we live with epilepsy […]

  Background – Why? In the early 2000’s, results from several antiepileptic drug (AED) pregnancy registries revealed that valproate the highest risks of AEDs for congenital malformations. In addition around the same time, researchers from the NIH NEAD study examined the short and long-term outcomes in babies exposed to four different AEDs during pregnancy.  From […]