Tag Archives: Disability and epilepsy

Women living with epilepsy CONGRATULATIONS most of us have been successful…. we have sent the message to our daughters that you keep secrets. We have taught them that it is okay to live in silence and shame. We have shown them by our actions that we do not tell others that we live with epilepsy […]

Graduations have come to an end and the summer is here.   I sit here thinking about attending our “Oldest Daughter, Ire”, from another set of parents, high school graduation at the end of May.  As we sat watching her graduate from Franklin High School it reminded me of how quickly the school years go by […]

Know your seizures! A first time and refresher guide to understanding different seizure types for people with epilepsy. Dr. Michael Kinney MB, MRCP (U.K.) and Dr. Kimford J. Meador MD. Introduction In every area of medicine it’s important that the words used between the doctor or health care professional and the person with the condition, […]

In life, there are few people that are true world changers. I believe that the medical community has the opportunity to be full of world changers if they stop, pause, and remember the reason they chose the medical field as their career.  A few chose this field because they wanted to make money however, I […]

Seizure freedom is never promised…. As I wrap my brain around the fact that I have just had my first seizure in years, the emotions are overwhelming.  First, the utter fear that has consumed me is almost too much to bear.  The fear of if another seizure will come or what people will think of […]

The world seems ever changing and yet I feel as though so much still remains the same…Each day new things are being presented to us to explore and experience, but we remain further behind for women’s health in regard to epilepsy.  At times, we think we have made huge strides in the area for women […]

It’s New Year’s Eve, the end of 2017, and the time of year when everyone is setting their New Year’s resolutions and goals for 2018.  As I reflect on the past year, I look at what I have accomplished and the things that I have not accomplished…. We tend to be harder on ourselves than […]

On this Thanksgiving Holiday, as the Education Coordinator for My Epilepsy Story (MES), I want to reflect on the many things that I am truly thankful for this holiday season . As well as, share my feelings as a husband of a woman living with epilepsy. First of all, I am Thankful for my faith […]

At My Epilepsy Story, we are partnering with different companies to help “Bridge the Gap“ for women and girls living with epilepsy. In forming partnerships, this allows us to serve women and girls diagnosed with epilepsy without seeking funding from them, the patient.  It allows the patient and their families to come to us and just […]

Your new baby has arrived and you are excited, tired, sleep deprived and on emotional roller coaster.  The joy of having that precious baby in your arms brings a full range of emotions.  You think to yourself… “I made it and my baby is here safe and sound.”, “I just need some sleep.”, ” Am […]