Tag Archives: Disability and epilepsy

I was 18-months-old when I had my first seizure.  It was during a very high fever, so considered a febrile seizure, but it was a seizure nonetheless.  My father was a doctor who had been a front line medic in World World II, but, the story goes, he completely lost his cool when I had […]

Self-Love is the regard for one’s own well-being and happiness (chiefly considered as a desirable rather than narcissistic characteristic).  Self-love is not a bad thing when we do it correctly… In life, many women and girls do not love themselves whether it is from the pressures of society or from the pain of our pasts.  We […]

March 1st is the 1st Annual International Women with Epilepsy Day! Today is International Women with Epilepsy Day!  This has been a vision of mine for several years to have a day devoted to EMPOWER Women and Girls Living with Epilepsy in EVERY corner of the world and it is so exciting to see the […]

How Social Stigma Affects Quality of Healthcare in Latinx Community Introduction Epilepsy is a historically misunderstood disease. While professionals are more knowledgeable, community and general knowledge is highly lacking. Approximately 65 million people in the world have some form of epilepsy, and 1 in 26 will develop epilepsy in their lifetime (Sirven & Shafer, 2014). […]

As I reflect on 2018 the word that comes to mind is Thankful.  I am thankful for wishes… I am thankful for all that we are are accomplishing at My Epilepsy Story (MES).  I am thankful for the amazing women and girls living with epilepsy that I have had the opportunity to meet this year. […]

My friend, Brandy with My Epilepsy Story, reached out to me and asked if I would write something that might help others like me, who have experienced the tragedy of loss.  Something that would help them be able to get through the holidays with a little comfort in knowing they are not alone.  Something that […]

My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have never been controlled, so I’ve had many surgeries in an attempt to identify the focal point and resect it. Within the last five years, I […]

Depression and Epilepsy You may not know but depression and epilepsy can go hand in hand, so it is prudent to be aware of any potential triggers, such as loss of sunlight.  As the days grow shorter it is important to be on guard against onset of seasonal symptoms.  Here are a few things I’ve […]

Women living with epilepsy CONGRATULATIONS most of us have been successful…. we have sent the message to our daughters that you keep secrets. We have taught them that it is okay to live in silence and shame. We have shown them by our actions that we do not tell others that we live with epilepsy […]

Graduations have come to an end and the summer is here.   I sit here thinking about attending our “Oldest Daughter, Ire”, from another set of parents, high school graduation at the end of May.  As we sat watching her graduate from Franklin High School it reminded me of how quickly the school years go by […]