Tag Archives: Disability and epilepsy

My Epilepsy Story (MES) was founded based off inequities of research into epilepsy and women’s health, and the consequences of being in an under researched patient population. We see a continued need to address the healthcare disparities within the women with epilepsy community. Disparities in the quality of healthcare are known to persist in rural […]

I became interested in epilepsy very soon after I started my Neurology residency. The intricacies of the disease, the ability to make a meaningful difference in terms of treatment and quality of life, and the wonderful patients that I get to see that have been diagnosed with this chronic condition have made me want to work […]

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Gholam Motamedi, Professor of Neurology and Director of the Comprehensive Epilepsy Center at Georgetown University Hospital in Washington, D.C. on: “Breastfeeding and Epilepsy“     Dr. Gholam Motamedi is a Professor of Neurology at Georgetown University Hospital. He is […]

On our series to EMPOWER Women and Girls Living with Epilepsy, today we hear from Robert Moss, Co-Founder of SeizureTracker.com on: Managing your Epilepsy & Tracking your Seizures    Robert Moss knows first hand how it feels to have a child with Tuberous Sclerosis Complex and Epilepsy.  It was the helplessness he felt in his own situation […]

BACK to SCHOOL TIPS from MES!   Yes, Folks, it’s that time of year again…so here are 10 tips to help prepare your child and yourself for the upcoming school year!   Set your kids sleep schedule back ‘to school time’ two weeks before the first day so that they can get into the school […]

  California Ashley Garcia – CA My name is Ashley Garcia. I am a 23 year old student from CA. I was diagnosed with epilepsy at age 13, and have been seizure free for 4 years. I became involved with My Epilepsy Story because I believe it plays a vital role in helping women realize […]

MES Ambassador Program    My Epilepsy Story (MES) is excited to announce we are accepting applications for our Ambassador Program.  This program will have MES Ambassadors from all across the country that join with us to EMPOWER women and girls living with epilepsy and to represent My Epilepsy Story. To apply for our ambassador program you will need to be a: […]

Hello friends! Jodi Suglio, MES Health & Wellness director here. As promised in my lil Facebook teaser post earlier this week (if you don’t follow us on our socials, do it!), I present “Fresh Fridays!”, a weekly healthy recipe share from some of my favorite chefs, dietitians, & go-to nutrition bloggers. I will be specifically […]

I was 18-months-old when I had my first seizure.  It was during a very high fever, so considered a febrile seizure, but it was a seizure nonetheless.  My father was a doctor who had been a front line medic in World World II, but, the story goes, he completely lost his cool when I had […]

Self-Love is the regard for one’s own well-being and happiness (chiefly considered as a desirable rather than narcissistic characteristic).  Self-love is not a bad thing when we do it correctly… In life, many women and girls do not love themselves whether it is from the pressures of society or from the pain of our pasts.  We […]