Tag Archives: American Epilepsy Society

Taking care of others has always been strong personality traits instilled in me by watching my mother do the same for her family.  Transferring that quality to becoming a doctor and providing care for others is due to the nurturing of my father.  My journey into medicine started young and I cannot imagine any other […]

On our series to EMPOWER Women and Girls Living with Epilepsy, today we hear from Robert Moss, Co-Founder of SeizureTracker.com on: Managing your Epilepsy & Tracking your Seizures    Robert Moss knows first hand how it feels to have a child with Tuberous Sclerosis Complex and Epilepsy.  It was the helplessness he felt in his own situation […]

MES Ambassador Program    My Epilepsy Story (MES) is excited to announce we are accepting applications for our Ambassador Program.  This program will have MES Ambassadors from all across the country that join with us to EMPOWER women and girls living with epilepsy and to represent My Epilepsy Story. To apply for our ambassador program you will need to be a: […]

I was 18-months-old when I had my first seizure.  It was during a very high fever, so considered a febrile seizure, but it was a seizure nonetheless.  My father was a doctor who had been a front line medic in World World II, but, the story goes, he completely lost his cool when I had […]

  Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Michael Privitera from the Epilepsy Center at the University of Cincinnati Gardner Neuroscience Institute in Cincinnati, Ohio on : “Epilepsy & Stress”   Dr. Michael Privitera is Professor of Neurology and Director of the Epilepsy Center at the […]

Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant   In a new finding, 53 percent of women with frontal lobe epilepsy, in which the seizures begin in the front of the brain, experience more frequent seizures during pregnancy, suggests a study that was presented at the American Epilepsy Society Annual […]

How Social Stigma Affects Quality of Healthcare in Latinx Community Introduction Epilepsy is a historically misunderstood disease. While professionals are more knowledgeable, community and general knowledge is highly lacking. Approximately 65 million people in the world have some form of epilepsy, and 1 in 26 will develop epilepsy in their lifetime (Sirven & Shafer, 2014). […]

My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have never been controlled, so I’ve had many surgeries in an attempt to identify the focal point and resect it. Within the last five years, I […]

We are launching new videos this month for patients and the medical community.  We wanted to share with you one of our videos that will be used for educating physicians as well as the medical community as a whole.  My Epilepsy Story (MES) believes that we need to educate the patient as well the medical […]

The captain’s voice breaks through my efforts of ignoring my talkative seat mate, who is practically sitting in my lap. “Due to a severe thunderstorm and circling the airport for an hour waiting for a safe break to land, we are running low on fuel. We will divert to Greensboro, NC to refuel. Those with connecting […]