With November being “National Epilepsy Awareness Month” I thought now would be an appropriate time to put something out there about the invisible disability that I have lived with for about 10 years. Until earlier this year when Disney’s young adult actor, Cameron Boyce, passed away in his sleep from a seizure, epilepsy hasn’t gotten […]
Category Archives: Real Life Epilepsy Stories
23
Oct
Oct
My story with epilepsy began right after my daughter turned two years old. She suddenly started turning blue, staring, and became lethargic. Over six months of testing, the episodes went from once every two weeks to 9 per day. Leighanne’s seizures presented as several other serious health problems, so it wasn’t until a scheduled inpatient […]
17
Oct
Oct
My epilepsy story didn’t start until 2012. At that time, I had my first seizure, but did not know it was a seizure. About 2 weeks later, I had 2 more seizures within a few days of each other. One was a deja vu experience and the other was a loss of time experience. Now […]
09
Oct
Oct
My name is Betty and I have had epilepsy since I was 2 years old. I was not allowed to do anything because of my epilepsy, so it made me feel locked up. I went through school in special classes and made it through getting my high school diploma. When I was 17 years old, […]
25
Sep
Sep
My name is Rachel and I am from Louisiana. I was diagnosed with Epilepsy in January of 2015. I was 26 years old at the time. It started one afternoon in January when I came home from work and my 2 year old was sick. My Dad cooked dinner that night, and my Mom was […]
17
Sep
Sep
When I was in 8th grade I had my first seizure. After not being able to see and then losing all motor skills, my feet were shaking and I was internally yelling at myself to stop this nonsense and not cause a scene. I then woke up on the floor surrounded by my mom and paramedics. I […]
20
Mar
Mar
I was 18-months-old when I had my first seizure. It was during a very high fever, so considered a febrile seizure, but it was a seizure nonetheless. My father was a doctor who had been a front line medic in World World II, but, the story goes, he completely lost his cool when I had […]
29
Nov
Nov
My husband and I recently adopted a precious little girl, Virginia Mei, from China. Virginia Mei’s adoption was a special needs adoption. We chose Virginia Mei knowing she had hydrocephalus- fluid on the brain. In China, we were informed from caregivers in her orphanage that she had a shunt in her head to help relieve the […]
27
Nov
Nov
My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have never been controlled, so I’ve had many surgeries in an attempt to identify the focal point and resect it. Within the last five years, I […]
25
Jan
Jan
My epilepsy story began when I was 3 years old. I came down with a severe case of Roseola and had a really high fever. One morning my mom came into my room and found me having a seizure. No one knows exactly how long the seizure lasted, but if a seizure lasts for a […]