Category Archives: Real Life Epilepsy Stories

With November being “National Epilepsy Awareness Month” I thought now would be an appropriate time to put something out there about the invisible disability that I have lived with for about 10 years. Until earlier this year when Disney’s young adult actor, Cameron Boyce, passed away in his sleep from a seizure, epilepsy hasn’t gotten […]

My story with epilepsy began right after my daughter turned two years old.  She suddenly started turning blue, staring, and became lethargic. Over six months of testing, the episodes went from once every two weeks to 9 per day.  Leighanne’s seizures presented as several other serious health problems, so it wasn’t until a scheduled inpatient […]

When I was in 8th grade I had my first seizure. After not being able to see and then losing all motor skills, my feet were shaking and I was internally yelling at myself to stop this nonsense and not cause a scene. I then woke up on the floor surrounded by my mom and paramedics. I […]

I was 18-months-old when I had my first seizure.  It was during a very high fever, so considered a febrile seizure, but it was a seizure nonetheless.  My father was a doctor who had been a front line medic in World World II, but, the story goes, he completely lost his cool when I had […]

My husband and I recently adopted a precious little girl, Virginia Mei, from China. Virginia Mei’s adoption was a special needs adoption. We chose Virginia Mei knowing she had hydrocephalus- fluid on the brain. In China, we were informed from caregivers in her orphanage that she had a shunt in her head to help relieve the […]

My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have never been controlled, so I’ve had many surgeries in an attempt to identify the focal point and resect it. Within the last five years, I […]

My epilepsy story began when I was 3 years old. I came down with a severe case of Roseola and had a really high fever. One morning my mom came into my room and found me having a seizure. No one knows exactly how long the seizure lasted, but if a seizure lasts for a […]