My Epilepsy Story

The beginning…

At the age of 15 I had a seizure and I was wondering what my life would hold.  I didn’t want anyone to know that I had epilepsy.  I thought would I become one of those kids in the “special” class and would people see me as different?  So young and so uninformed on epilepsy, I had no idea that I could lead a full life while having this medical condition.  For the most part my epilepsy hadn’t really affected my life.

I have grown to be confident in telling people that I have epilepsy and that there is more to life than this condition.  However, almost eight years ago I gave birth to my first child and realized that epilepsy did affect my life.  Research now shows that the antiepileptic drug I was prescribed can cause developmental delay in children when exposed in utero.  You see the medication that I took everyday to have my epilepsy not affect me on a daily basis has now affected my sweet baby…..

I cannot even begin to describe the guilt and emotions that I live with as I watch my son fighting  everyday to overcome his challenges at such a young age.  I see this world through his eyes now….I have decided to fight this horrible condition that continues to affect so many people.  I was lucky to be in the 70% of people that responds to treatment, yet my epilepsy has now affected my son.  Would you call that lucky?  Some people do….My passion is to have people realize that the 70% of people that respond to treatment still have epilepsy affect their lives.  When will this end….

One day when we find a cure……….

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Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

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Receive valuable content and personal stories from other women and girls just like yourself.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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