Coming Soon!! We are excited to announce that March 1st is our first annual International Women with Epilepsy Day! This day is to EMPOWER Women and Girls Living with Epilepsy in EVERY corner of the world. At My Epilepsy Story (MES), we are going to ‘Bridge the Gap’ by Advocating, Researching and Educating for these young girls […]
05
Feb
Feb
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Michael Privitera from the Epilepsy Center at the University of Cincinnati Gardner Neuroscience Institute in Cincinnati, Ohio on : “Epilepsy & Stress” Dr. Michael Privitera is Professor of Neurology and Director of the Epilepsy Center at the […]
For Physicians, From The Experts, Health & Wellness, Pregnancy, Types of Epilepsy
Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant
09
Jan
Jan
Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant In a new finding, 53 percent of women with frontal lobe epilepsy, in which the seizures begin in the front of the brain, experience more frequent seizures during pregnancy, suggests a study that was presented at the American Epilepsy Society Annual […]
08
Jan
Jan
At the beginning of each year my husband, James, chooses a word for our family to be our guidance and focus for that year. Each year our family waits to hear what he has chosen for our family word. I must say that the word we have each year is a constant reminder of the […]
07
Jan
Jan
How Social Stigma Affects Quality of Healthcare in Latinx Community Introduction Epilepsy is a historically misunderstood disease. While professionals are more knowledgeable, community and general knowledge is highly lacking. Approximately 65 million people in the world have some form of epilepsy, and 1 in 26 will develop epilepsy in their lifetime (Sirven & Shafer, 2014). […]
30
Dec
Dec
As I reflect on 2018 the word that comes to mind is Thankful. I am thankful for wishes… I am thankful for all that we are are accomplishing at My Epilepsy Story (MES). I am thankful for the amazing women and girls living with epilepsy that I have had the opportunity to meet this year. […]
28
Dec
Dec
Happy holidays friends! I hope this finds you well, I know it’s been awhile since I’ve last posted. I imagine, like me, you are diligently preparing for some amazing time with friends & family to celebrate this wonderful time of year. Cleaning, cooking, decorating, shopping, traffic, parties & school programs, traveling… things can get really […]
18
Dec
Dec
Managing Epilepsy with a Baby in the NICU Last April 2017 my daughter, Zoey, came into this world a lot earlier than expected. She was born at 31 weeks, 5 days, weighing only 3 lbs. I remember several hours after her birth being wheeled up to the NICU to meet my daughter for the […]
Brandy's Personal Posts, Helpful Epilepsy Information, Parents of Girls Diagnosed with Epilepsy
Surviving the Holidays after Losing Your Daughter to Epilepsy
14
Dec
Dec
My friend, Brandy with My Epilepsy Story, reached out to me and asked if I would write something that might help others like me, who have experienced the tragedy of loss. Something that would help them be able to get through the holidays with a little comfort in knowing they are not alone. Something that […]
29
Nov
Nov
My husband and I recently adopted a precious little girl, Virginia Mei, from China. Virginia Mei’s adoption was a special needs adoption. We chose Virginia Mei knowing she had hydrocephalus- fluid on the brain. In China, we were informed from caregivers in her orphanage that she had a shunt in her head to help relieve the […]