I wanted to unveil this exciting news during our annual American Epilepsy Society (AES) meeting! I am writing to share with you about our newest award from the My Epilepsy Story (MES) organization, the Dr. Sandra Helmers Memorial Scholarship for young women living with epilepsy that want to go to college or trade school. Dr. Helmers was […]
04
Dec
Dec
Primary Care Physicians (PCPS) and Neurologists should be working hand and hand to provide quality healthcare to patients across the country. We should be working together within our residency programs to facilitate this cultural change while our doctors are still in training. When we educate the primary care physician on the American Academy of Neurology […]
25
Nov
Nov
Thanksgiving 2020 2020 has been a long, eventful year with the Covid-19 pandemic. Many will be tempted to reconnect with family and friends across the country or your home state for Thanksgiving 2020. However, with Covid cases and deaths sharply rising, it is safer to stay at home. Many underestimate or misunderstand Covid and what […]
For Physicians, From The Experts, Health & Wellness, Helpful Epilepsy Information, News, Parents of Girls Diagnosed with Epilepsy
IT’S NOT JUST SEIZURESTM: Quality of Life Survey
17
Nov
Nov
Seizure Tracker IT’S NOT JUST SEIZURESTM (INJS) Initiative Epilepsy is so much more than just a medical diagnosis. Quality of life can often be overlooked and the impact of living with seizures on self and family is limitedly understood. To better improve on this aspect of epilepsy care, My Epilepsy Story is partnering with Seizure Tracker to promote a […]
26
Oct
Oct
I see your eyes above the mask you are wearing each day while you are at work, at the grocery store, on the bus or walking on the street. I see how tired you are of the endless fighting on social media, during this election cycle, in our government, in our places of work, with […]
Girls With Epilepsy, Helpful Epilepsy Information, Parents of Girls Diagnosed with Epilepsy, Types of Epilepsy
Epilepsy Caregiver Support Guide
28
Aug
Aug
“I will never forget the first time I saw my wife have a seizure. I felt pure panic, fear, confusion, uncertainty, and most of all helplessness. My knowledge of epilepsy came from what I’d seen on TV and movies. After a multitude of tests, hospital and doctors’ visits we received the diagnosis of epilepsy. And […]
Brandy's Personal Posts, Helpful Epilepsy Information, James's Posts
Homeschool vs. Traditional School during COVID-19
29
Jul
Jul
COVID-19 has ushered in a new normal in many aspects of our lives. Along with the drastic changes in our basic social behavior and habits there are many new questions that need to be addressed. As we head into another school year the prospects of determining whether to send your children back to school, have […]
22
Jul
Jul
In my crazy busy weekly schedule, I look forward to Wednesday mornings. I enthusiastically anticipate this 4-hour block of time as I know I will be working in our outpatient epilepsy clinic. I am so blessed to have this opportunity to work not only with my favorite Nurse Practitioner (Lucretia Long), but also with many […]
Brandy's Personal Posts, Educational Services, From The Experts, Helpful Epilepsy Information
The “Doctor Is In” but Should I Go?
07
Jul
Jul
The COVID-19 pandemic has brought unprecedented changes in how patients can receive medical care and access their physicians. Although telemedicine has been around for several years, use has been limited, mostly due to restrictions in insurance coverage, location where telemedicine could be performed and the need for ‘HIPAA compliant’ platforms. However, beginning in March, both […]
Brandy's Personal Posts, For Physicians, Helpful Epilepsy Information, Real Life Epilepsy Stories
Addressing Healthcare Disparities in Women with Epilepsy
09
Jun
Jun
My Epilepsy Story (MES) was founded based off inequities of research into epilepsy and women’s health, and the consequences of being in an under researched patient population. We see a continued need to address the healthcare disparities within the women with epilepsy community. Disparities in the quality of healthcare are known to persist in rural […]