The COVID-19 pandemic has brought unprecedented changes in how patients can receive medical care and access their physicians. Although telemedicine has been around for several years, use has been limited, mostly due to restrictions in insurance coverage, location where telemedicine could be performed and the need for ‘HIPAA compliant’ platforms. However, beginning in March, both […]
Author Archives: Jacquelin
Brandy's Personal Posts, For Physicians, Helpful Epilepsy Information, Real Life Epilepsy Stories
Addressing Healthcare Disparities in Women with Epilepsy
09
Jun
Jun
My Epilepsy Story (MES) was founded based off inequities of research into epilepsy and women’s health, and the consequences of being in an under researched patient population. We see a continued need to address the healthcare disparities within the women with epilepsy community. Disparities in the quality of healthcare are known to persist in rural […]
06
May
May
Are You a Recently Furloughed or Laid-Off Parent? We live in uncertain times as we are confronted with the collateral damage of the COVID19 pandemic. I understand that not only is our basic way of life being disrupted by the new normal way of personally interacting with each from a distance but the unplanned side effects […]
01
May
May
I started working with people with epilepsy without any intention to make it my specialty. I took a position as a nurse at the University of Kentucky on a busy medical surgical unit which also housed our epilepsy monitoring unit, where I stayed for 7 years. At the end of those seven years, I was […]
28
Apr
Apr
CARES ACT (2020) + Unemployment Benefits Millions of Americans have been either laid off or furloughed, and are thus without a reliable source of income. The global Covid-19 pandemic has changed the rules of traditional unemployment by expanding who is eligible for benefits. Many people like gig workers or self-employed workers are traditionally not eligible […]
Brandy's Personal Posts, Girls With Epilepsy, Health & Wellness, Helpful Epilepsy Information, Parents of Girls Diagnosed with Epilepsy, Real Life Epilepsy Stories
MES Online Support Group
03
Apr
Apr
Join Us Every Week! My Epilepsy Story is launching a weekly Online Support Group! In this globally chaotic time anything can become or seem overwhelming. Whether you have questions about COVID-19 & Epilepsy, telemedicine during quarantine, have more general questions, or just need someone who understands to listen, we invite you to join us every […]
25
Feb
Feb
Facebook Twitter Google-plus Linkedin Instagram Join Us on March 1st To celebrate International Women With Epilepsy Day, My Epilepsy Story will be hosting a Live Chat via Zoom on March 1st, 2020 at 4PM PST/7PM EST where you can: – Learn About Epilepsy & Women’s Health – – Meet our MES Ambassadors – – Engage […]
22
Dec
Dec
Thank you all for your support this past year! Thank your for supporting our mission to advocate, educate, and research for women and girls living with epilepsy! Your contributions this past year have really made a difference. This year we awarded our annual Kimford J. Meador Research in Women with Epilepsy Award at American Epilepsy Society. […]
23
Oct
Oct
My story with epilepsy began right after my daughter turned two years old. She suddenly started turning blue, staring, and became lethargic. Over six months of testing, the episodes went from once every two weeks to 9 per day. Leighanne’s seizures presented as several other serious health problems, so it wasn’t until a scheduled inpatient […]
17
Oct
Oct
My epilepsy story didn’t start until 2012. At that time, I had my first seizure, but did not know it was a seizure. About 2 weeks later, I had 2 more seizures within a few days of each other. One was a deja vu experience and the other was a loss of time experience. Now […]